'Sister Wives’ Maddie Brown’s Shares Emotional Video About Daughter’s Rare Condition That Causes Limb Malformation, Thanking Fans For Support

Maddie is a new mom and has to face her fair share of struggles as a new parent. She has always been regular in going for her ultrasounds when she was pregnant. But in her 28th week, she noticed that the doctor’s behavior was different. Let’s take a look.

Sister Wives: Here Is What Maddie’s Doctor Observed

Maddie stated that usually, the ultrasound takes about 45 minutes. But this time, the doctor kept on looking. It didn’t seem normal at all, and Maddie was stressing out the entire time. Finally, when two hours passed, the doctor told her to meet him in his office. At that time, he told her that he was unable to find all ten fingers. The diagnosis stated oligodactyly, a condition in which each hand has less than five fingers.

Despite the presence of a congenital anomaly, the doctor said that he was relieved because it could have been worse. When the couple welcomed their daughter, she was missing a thumb, toe, a calfbone, and had a bent shin bone. At the time she was born, the parents were freaking out. They just had a baby, and the hospital was full of specialists checking her out.

Sister Wives: Maddie’s Daughter Evangalynn Suffering From a Rare Genetic Disorder

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This is one of the hardest things that Caleb and I have gone through and the decision to share almost as difficult, but after a lot of consideration, we realized that it’s the best thing for our daughter and there is a chance it may help other parents who may also be struggling. . Our beautiful baby daughter Evie has been diagnosed with FATCO syndrome (basically the abbreviation for lots of intense Latin words😅). It’s a rare medical syndrome where bones in extremities do not fully develop. . . It wasn’t a complete surprise; we were aware of some abnormalities before birth. We knew something was wrong when we went in for a routine anatomy ultrasound at 26 weeks and what should have taken 45 minutes, ended up lasting a nerve-wracking two hours. It was then that the doctor told us that they couldn’t find all ten fingers and diagnosed the baby with oligodactyly (fewer than 10 fingers). Although this was better than expected, it was still heartbreaking news. . But when Evie was born, Caleb and I found out our precious little girl was missing more than just one finger. She was missing three fingers, a toe and her fibula. She also had a bowed tibia, a shortened forearm and some fusing in her fingers. It was at this point, the doctors diagnosed her with FATCO syndrome. . We were hesitant to share Evie’s condition publicly for fear that our infant daughter would become the target of mean jokes and cyberbullying. That said, we felt not being open would be even worse and make Evie feel ashamed for something that makes her all the more special in our eyes. .. As far as we have been told, with fewer than 10 recorded cases of her specific findings, it’s unclear what causes the condition. She is healthy in every other way aside from the missing bones. As a family, we have decided to be open as we walk through this jo
urney. We want Evie to always feel pride in who she is, and all that God gave her!

A post shared by Maddie Brush (@madison_rose11) on Oct 23, 2019 at 5:27am PDT

Tibial campomelia, fibular aplasia, and oligosyndactyly (FATCO) syndrome are the three genetic disorders the doctors diagnosed the baby with. The rare disorder affects bone formation in the utero and the causes are unknown. Since the disease is rare, it’s hard to anticipate the future of the little girl.
As for now, the family has to wait and see as her body develops. The doctors might be able to provide more clarity as she attains one year of age. At that time, the family can also opt for amputations and surgeries. The condition is not normal and usually shocks people. But Maddie has decided not to hide it as it won’t be helpful. Since most people don’t know much about this condition, she is trying to raise awareness.

Sister Wives: What Do Fans Have To Say?

People have been showering the couple with love and support. Most fans are also thanking them for spreading knowledge about the condition. They are grateful to her for sharing the picture and say that the baby is adorable. The majority of the viewers shower her with blessings and leave positive comments on the picture. They state that Evie has all the love and support she needs. Without a doubt, Maddie is fierce and confident. In fact, after revealing her daughter’s condition, she also thanked the fans for the overwhelming positive response.